Researchers from CATCH recently presented work at a major
international conference in Dublin on May 24th. The International
Association of Geriatrics and Gerontology – European Region (IAGG-ER)
conference is among the world’s largest meetings of clinicians, academics, and
industry representatives, and service users – all of whom share an interest in
aging research. The theme of the 2015 meeting was ‘unlocking the demographic
dividend’, which sought to highlight the potentially huge social benefits of an
aging society. This theme offered a much-needed counterpoint to many popular
representations of aging, which all too often portray older people as a burden
on communities and public services.
Dr. Tim
Gomersall and Prof. Arlene Astell presented findings from the early stages of
the Ambient Assisted Living Technologies for Wellness and Engagement in Later
Life (AAL-WELL) project – an international collaboration bringing together
psychologists, occupational therapists, software engineers and sociologists to
examine the potential for pervasive computing to enhance the independence and
community engagement of older people with cognitive difficulties. Their talk
described a review of qualitative studies on the experience of living with a
diagnosis of ‘mild cognitive impairment’ – a little-known syndrome representing
a transitional or boundary state between cognitive aging and dementia. The
review showed that receiving a diagnosis of mild cognitive impairment could
have a far-reaching impact on a person’s sense of self. Yet the label of mild
cognitive impairment is one which people struggle to make sense of, and the available
studies show how people puzzle over the implications of the diagnosis – for
example, whether it means they will go on to develop dementia in future, or if
the cognitive difficulties they experienced were part and parcel of the
‘normal’ aging process. Other AAL-WELL researchers presented their ideas: Dr.
Eva Lindqvist and Prof. Louise Nygard (Karolinska Institutet) discussed the
kinds of everyday activities people with MCI wish to master, and Rajjeet Phull
and Prof. Alex Mihailidis (Toronto University) reflected on potential software
solutions to support this patient group. Dr. Piper Jackson and Prof. Andrew
Sixsmith (Simon Fraser University, Vancouver) rounded the AAL-WELL talks off by
considering the variety of theoretical models the researchers had brought to
the project from their different disciplinary backgrounds.
Dr. Gomersall said, “I think that
people with mild cognitive impairment are an under-served group. They don’t
usually get the kind of cognitive enhancing drugs that people with Alzheimer’s
disease and other dementias do, and the psychosocial services for people with
MCI are patchy at best. This is understandable, because researchers have only
recently begun looking at MCI in depth, but that doesn’t make things any less
frustrating for people living with the diagnosis. Our findings represent an
early attempt to understand people’s experiences of MCI, which we hope can be
used to develop and improve services in future.” He went on: “Our collaborators
in Canada and Sweden are also doing excellent work in understanding the needs
of people with MCI, and developing software platforms that could be used to
support them in everyday tasks – everything from making safe online payments to
cooking the family meal. For our next step here in Sheffield, we are recruiting
people with MCI from local clinics to help us think about what methods we
should use to evaluate these ICT-based solutions.”
More information on the AAL-WELL
project is available on the study website.
A full version of the research presented at the conference is soon to be
published in the peer reviewed journal, the
Gerontologist, as: Gomersall, Astell, Nygård, Sixsmith, Mihailidis, &
Hwang. “Living with ambiguity: A metasynthesis of qualitative research on mild
cognitive impairment”.
Written by Dr Tim Gomersall
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