24 hours of continuous work (well, maybe with a short break)
is hard work.
As a facilitator, I had the luxury of watching the whole
event unfold without having to dive in and do the tough job of creating a
meaningful piece of Participatory Design over a single day.
Genuine Participatory Design - where everyone involved can
have a meaningful impact on the outcome - requires mutual learning. This means
that everyone involved in the process learns something from the other people
taking part. For the designers, this meant learning something from the lived
experience of the Design Partners who live with Parkinson's; and for the people
living with Parkinson's (along with clinicians and their professional
experience) they see how the design process can move rapidly to propose a 'new
future'.
The event was a great success, and I would very much like to
thank all who took part in the challenge - without whom none of the excellent
work shown below would have even happened!
Thanks also to Professor Julia Cassim of the Kyoto Design
Lab for co-facilitating the event. This event was a collaboration between Lab 4
Living (at Sheffield Hallam University Art & Design Research Centre) and
the Kyoto Design Lab (at Kyoto Institute of Technology).
Team 1 - Pace
Team 1 - Pace
Freezing is a physical symptom experienced by some people
living with Parkinson's. It often happens during a repetitive task (such as
walking), and has been described as 'having your feet glued to the ground'. It
causes considerable anxiety and is perceived as deeply stigmatising by those
who experience it - as the effect is not well known or understood by the
general population.
Team 1 came up with a low-cost concept to help manage
Freezing - by taking a genuinely Inclusive approach to design they created a
product that has applications beyond Parkinson's alone - the product is
directly applicable to athletes. Team 1 created Pace - a personal metronome,
easily configured by the user - with even the packaging and branding designed
by the team in 24 hours. Part of the presentation included the video below.
Video Link: https://www.youtube.com/watch?v=NhJNJ46Tk4c
Team 2 - SlowGo
Team 2 took a markedly different direction from the other
two teams, in that they designed an experience - a piece of service design that
slowed the pace of certain activities. Slowness is one of the main symptoms of
Parkinson's, and at a supermarket checkout, busy café, or airport security (to
name a few examples) this causes significant anxiety and stigma. SlowGo is a
service with a brand that is independent of supermarket providers, cafés and
airport security operators - a service provider that is subscribed to by those
operators to entice people who appreciate having a bit more time to complete
these tasks.
SlowGo is inclusive - it benefits families with toddlers,
people with disabilities, older people, or even just people who don't feel like
rushing.
SlowGo won the JRI Orthopaedics Judge's award for the
innovative approach shown over the 24hr Design Challenge.
Team 3 - PulsePal
Charlotte MacRae,
Thomas Fisher, Laura Malan, Valarie Carr (Team Lead), Hester van Zuthem, Heath
Read, Claire Keeley (Clinician), Chris Iveson, Ali Finlayson, and Jane
Finlayson (Design Partners)
|
Team 3 developed PulsePal, a hardware / software combination
that aimed to improve the self-management of Freezing for those who live with
Parkinson's. It is testament to the problem that freezing poses that two of the
three teams competing chose to focus on it!
The hardware proposed by Team 3 included a technology to
gently squeeze the wearer's arm (simulating a person's grip), as well as
vibrate. The device pairs with a smartphone, allowing customisation of the
vibration strength and frequency, as well as being able to record ancillary
information about freezing incidents... to allow the wearer to sport patterns.
Team 3 won the Devices for Dignity People's Choice award -
voted for by the delegates of the Design 4 Health conference.
Written by Dr Matt Dexter, Sheffield Hallam University
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